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About Karen Jean
Matsko Hood Favorite Charities
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Achalasia
What is achalasia?
Achalasia is a
rare disease of the muscle of the esophagus
(swallowing tube). The term achalasia means
"failure to relax" and refers to the
inability of the lower esophageal sphincter
(a ring of muscle between the lower
esophagus and the stomach) to open and let
food pass into the stomach. As a result,
patients with achalasia have difficulty
swallowing food.
How does the normal esophagus
function?
The
esophagus has three functional parts. The
uppermost part is the upper esophageal
sphincter, a specialized ring of muscle that
forms the upper end of the tubular esophagus
and separates the esophagus from the throat.
The upper sphincter remains closed most of
the time to prevent food in the main part of
the esophagus from backing up into the
throat. The main part of the esophagus is
referred to as the body of the esophagus, a
long, muscular tube approximately 20 cm (8
in) in length. The third functional part of
the esophagus is the lower esophageal
sphincter, a ring of specialized esophageal
muscle at the junction of the esophagus with
the stomach. Like the upper sphincter, the
lower sphincter remains closed most of the
time to prevent food and acid from backing
up into the body of the esophagus from the
stomach.
The upper
sphincter relaxes with swallowing to allow
food and saliva to pass from the throat into
the upper esophageal body. The muscle in the
upper esophagus just below the upper
sphincter then contracts, squeezing food and
saliva further down into the esophageal
body. The ring-like contraction of the
muscle progresses down the body of the
esophagus, propelling the food and saliva
towards the stomach. (The progression of the
muscular contraction through the esophageal
body is referred to as a peristaltic wave.).
By the time the peristaltic wave reaches the
lower sphincter, the sphincter is open, and
the food passes into the stomach.
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http://www.medicinenet.com/achalasia/article.htm
Gastroesophageal Reflux Disease
(GERD, Acid Reflux)
What is GERD (acid reflux)?
Gastroesophageal reflux disease, commonly referred to as GERD, or acid reflux,
is a condition in which the liquid content of the stomach regurgitates (backs
up, or refluxes) into the esophagus. The liquid can inflame and damage the
lining of the esophagus although this occurs in a minority of patients. The
regurgitated liquid usually contains acid and pepsin that are produced by the
stomach. (Pepsin is an enzyme that begins the digestion of proteins in the
stomach.) The refluxed liquid also may contain bile that has backed-up into the
stomach from the duodenum. (The duodenum is the first part of the small
intestine that attaches to the stomach.) Acid is believed to be the most
injurious component of the refluxed liquid. Pepsin and bile also may injure the
esophagus, but their role in the production of esophageal inflammation and
damage (esophagitis) is not as clear as the role of acid.
GERD is a
chronic condition. Once it begins, it usually is life-long. If there is injury
to the lining of the esophagus (esophagitis), this also is a chronic condition.
Moreover, after the esophagus has healed with treatment and treatment is
stopped, the injury will return in most patients within a few months. Once
treatment for GERD is begun, therefore, it usually will need to be continued
indefinitely.
Actually,
the reflux of the stomach's liquid contents into the esophagus occurs in most
normal individuals. In fact, one study found that reflux occurs as frequently in
normal individuals as in patients with GERD. In patients with GERD, however, the
refluxed liquid contains acid more often, and the acid remains in the esophagus
longer.
As is
often the case, the body has ways (mechanisms) to protect itself from the
harmful effects of reflux and acid. For example, most reflux occurs during the
day when individuals are upright. In the upright position, the refluxed liquid
is more likely to flow back down into the stomach due to the effect of gravity.
In addition, while individuals are awake, they repeatedly swallow, whether or
not there is reflux. Each swallow carries any refluxed liquid back into the
stomach. Finally, the salivary glands in the mouth produce saliva, which
contains bicarbonate. With each swallow, bicarbonate-containing saliva travels
down the esophagus. The bicarbonate neutralizes the small amount of acid that
remains in the esophagus after gravity and swallowing have removed most of the
liquid.
Gravity,
swallowing, and saliva are important protective mechanisms for the esophagus,
but they are effective only when individuals are in the upright position. At
night while sleeping, gravity is not in effect, swallowing stops, and the
secretion of saliva is reduced. Therefore, reflux that occurs at night is more
likely to result in acid remaining in the esophagus longer and causing greater
damage to the esophagus.
Certain conditions make a person susceptible to GERD.
For example, GERD can be a serious problem during pregnancy. The elevated
hormone levels of pregnancy probably cause reflux by lowering the pressure in
the lower esophageal sphincter (see below). At the same time, the growing fetus
increases the pressure in the abdomen. Both of these effects would be expected
to increase reflux. Also, patients with diseases that weaken the esophageal
muscles (see below), such as
scleroderma or mixed connective tissue diseases, are more prone to develop
GERD.

http://www.medicinenet.com/gastroesophageal_reflux_disease_gerd/article.htm

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The Alzheimer's Foundation of America
focuses on "Together
for Care…in addition to Cure." |
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Our Mission:
"To provide optimal care and services to individuals
confronting dementia, and to their caregivers and
families—through member organizations dedicated to
improving quality of life." |
|
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No one
should face this disease alone. |
|
Reach Out for Care
866.AFA.8484
(toll-free)
866.232.8484 (toll-free) |
http://alzfdn.org/
Introduction
Alzheimer’s disease is a brain disorder named for
German physician Alois Alzheimer,
who first described it in 1906. Scientists have
learned a great deal about Alzheimer’s disease in
the century since Dr. Alzheimer first drew attention
to it. Today we know that Alzheimer’s:
- Is a common and serious brain
disease. More than 5 million Americans
now have Alzheimer’s. Although symptoms can vary
widely, the first problem many people notice is
forgetfulness severe enough to affect their
work, lifelong hobbies or social life.
- Gets worse over time. As
the disease progresses, other symptoms include
confusion, trouble with organizing and
expressing thoughts, misplacing things, getting
lost in familiar places, and changes in
personality and behavior. For more information,
see
Warning Signs or
Stages of Alzheimer’s Disease.
- Is the most common form of dementia,
a general term for the loss of memory and other
intellectual abilities serious enough to
interfere with daily life. Vascular dementia,
another common type, is caused by reduced blood
flow to parts of the brain. In mixed dementia,
Alzheimer’s and vascular dementia occur
together. For more information about other
causes of dementia, please see
Related Diseases.
- Has no current cure. But
treatments for symptoms, combined with the
right services and support, can make life better
for the millions of Americans living with
Alzheimer’s. We’ve learned most of what we know
about Alzheimer’s in the last 15 years. There is
an accelerating worldwide effort under way to
find better ways to treat the disease, delay its
onset, or prevent it from developing. Learn more
about recent progress in Alzheimer science and
research funded by the Alzheimer’s Association
in the
Research section.
Alzheimer's and the brain
Just like the rest of our bodies, our brains
change as we age. Most of us notice some slowed
thinking and occasional problems remembering certain
things. However, serious memory loss, confusion and
other major changes in the way our minds work are
not a normal part of aging. They may be a sign that
brain cells are failing.
The brain has 100 billion nerve cells (neurons).
Each nerve cell communicates with many others to
form networks.
Nerve cell networks have special jobs. Some are
involved in thinking, learning and remembering.
Others help us see, hear and smell. Still others
tell our muscles when to move.
To do their work, brain cells operate like tiny
factories. They take in supplies, generate energy,
construct equipment and get rid of waste. Cells also
process and store information. Keeping everything
running requires coordination as well as large
amounts of fuel and oxygen.
In Alzheimer’s disease, parts of the cell’s factory
stop running well. Scientists are not sure exactly
where the trouble starts. But just like a real
factory, backups and breakdowns in one system cause
problems in other areas. As damage spreads, cells
lose their ability to do their jobs well.
Eventually, they die.
Learn more about Alzheimer's:
Brain Tour
The role of plaques and tangles
Two abnormal structures called plaques and
tangles are prime suspects in damaging and killing
nerve cells. Plaques and tangles were among the
abnormalities that Dr. Alois Alzheimer saw in the
brain of Auguste D., although he called them
different names.
- Plaques build up between
nerve cells. They contain deposits of a protein
fragment called beta-amyloid (BAY-tuh
AM-uh-loyd). Tangles are twisted fibers of
another protein called tau (rhymes with “wow”).
- Tangles form inside dying
cells. Though most people develop some plaques
and tangles as they age, those with Alzheimer’s
tend to develop far more. The plaques and
tangles tend to form in a predictable pattern,
beginning in areas important in learning and
memory and then spreading to other regions.
Scientists are not absolutely sure what role
plaques and tangles play in Alzheimer’s disease.
Most experts believe they somehow block
communication among nerve cells and disrupt
activities that cells need to survive.
Early stage and early onset
Early-stage is the early part of Alzheimer’s
disease when problems with memory, thinking and
concentration may begin to appear in a doctor’s
interview or medical tests. Individuals in the
early-stage typically need minimal assistance with
simple daily routines. At the time of a diagnosis,
an individual is not necessarily in the early stage
of the disease; he or she may have progressed beyond
the early stage.
The term early-onset refers to Alzheimer's that
occurs in a person under age 65. Early-onset
individuals may be employed or have children still
living at home. Issues facing families include
ensuring financial security, obtaining benefits and
helping children cope with the disease. People who
have early-onset dementia may be in any stage of
dementia – early, middle or late.
History
At a scientific meeting in November 1906, German
physician Alois Alzheimer presented the case of
“Frau Auguste D.,” a 51-year-old woman brought to
see him in 1901 by her family. Auguste had developed
problems with memory, unfounded suspicions that her
husband was unfaithful, and difficulty speaking and
understanding what was said to her. Her symptoms
rapidly grew worse, and within a few years she was
bedridden. She died in Spring 1906, of overwhelming
infections from bedsores and pneumonia.
Dr. Alzheimer had never before seen anyone like
Auguste D., and he gained the family’s permission to
perform an autopsy. In Auguste’s brain, he saw
dramatic shrinkage, especially of the cortex, the
outer layer involved in memory, thinking, judgment
and speech. Under the microscope, he also saw
widespread fatty deposits in small blood vessels,
dead and dying brain cells, and abnormal deposits in
and around cells.
The condition entered the medical literature in
1907, when Alzheimer published his observations
about Auguste D. In 1910, Emil Kraepelin, a
psychiatrist noted for his work in naming and
classifying brain disorders, proposed that the
disease be named after Alzheimer.

Auguste D. |

Dr. Alois Alzheimer |
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More
information
The Basics of
Alzheimer's
Disease
(32
pages) |
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Learn
About Cancer
http://www.cancer.org/docroot/home/index.asp
|
What Is Cancer? |
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Cancer occurs when cells in a part of the body
begin to grow out of control. Normal cells divide
and grow in an orderly fashion, but cancer cells do
not. They continue to grow and crowd out normal
cells. Although there are many kinds of cancer, they
all have in common this out-of-control growth of
cells.
Different kinds of cancer can behave very
differently. For example, lung cancer and breast
cancer are very different diseases. They grow at
different rates and respond to different treatments.
That’s why people with cancer need treatment that is
aimed at their kind of cancer.
Sometimes cancer cells break away from a tumor and
spread to other parts of the body through the blood
or lymph system. They can settle in new places and
form new tumors. When this happens, it is called
metastasis (meh-tas-tuh-sis).
Cancer that has spread in this way is called
metastatic cancer.
Even when cancer has spread to a new place in the
body, it is still named after the part of the body
where it started. For example, if prostate cancer
spreads to the bones, it is still called prostate
cancer. If breast cancer spreads to the lungs, it is
still breast cancer. When cancer comes back in a
person who appeared to be free of the disease after
treatment, it is called a
recurrence.
American Diabetes Association
http://www.diabetes.org/home.jsp
All About
Diabetes

Diabetes is a disease in
which the body does not produce
or properly use insulin. Insulin
is a hormone that is needed to
convert sugar, starches and
other food into energy needed
for daily life. The cause of
diabetes continues to be a
mystery, although both genetics
and environmental factors such
as obesity and lack of exercise
appear to play roles.
There are 20.8 million
children and adults in the
United States, or 7% of the
population, who have diabetes.
While an estimated 14.6 million
have been diagnosed with
diabetes, unfortunately, 6.2
million people (or nearly
one-third) are unaware that they
have the disease.
In order to determine whether
or not a patient has
pre-diabetes or diabetes, health
care providers conduct a Fasting
Plasma Glucose Test (FPG) or an
Oral Glucose Tolerance Test (OGTT).
Either test can be used to
diagnose pre-diabetes or
diabetes. The American Diabetes
Association recommends the FPG
because it is easier, faster,
and less expensive to perform.
With the FPG test, a fasting
blood glucose level between 100
and 125 mg/dl signals
pre-diabetes. A person with a
fasting blood glucose level of
126 mg/dl or higher has
diabetes.
In the OGTT test, a person's
blood glucose level is measured
after a fast and two hours after
drinking a glucose-rich
beverage. If the two-hour blood
glucose level is between 140 and
199 mg/dl, the person tested has
pre-diabetes. If the two-hour
blood glucose level is at 200
mg/dl or higher, the person
tested has diabetes.
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Major Types of Diabetes
Type 1 diabetes
Results from the body's
failure to produce insulin, the
hormone that "unlocks" the cells
of the body, allowing glucose to
enter and fuel them. It is
estimated that 5-10% of
Americans who are diagnosed with
diabetes have type 1 diabetes.
Type 2 diabetes
Results from insulin resistance
(a condition in which the body
fails to properly use insulin),
combined with relative insulin
deficiency. Most Americans who
are diagnosed with diabetes have
type 2 diabetes.
Gestational diabetes
Gestational diabetes affects
about 4% of all pregnant women -
about 135,000 cases in the
United States each year.
Pre-diabetes
Pre-diabetes is a condition that
occurs when a person's blood
glucose levels are higher than
normal but not high enough for a
diagnosis of type 2 diabetes.
There are 54 million Americans
who have pre-diabetes, in
addition to the 20.8 million
with diabetes.
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American Heart Association
http://www.americanheart.org
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Heart Attack, Stroke and Cardiac Arrest
Warning Signs
Quick Links:
Heart Attack Warning Signs
Stroke Warning Signs
Cardiac Arrest Warning Signs
Act in Time
The American Heart Association and the
National Heart, Lung, and Blood Institute
have launched a new "Act in Time" campaign
to increase people's awareness of heart
attack and the importance of calling 9-1-1
immediately at the onset of heart attack
symptoms.
Find the links here.
Dial 9-1-1 Fast
Heart attack and stroke are life-and-death
emergencies — every second counts. If you
see or have any of the listed symptoms,
immediately call 9-1-1. Not all these signs
occur in every heart attack or stroke.
Sometimes they go away and return. If some
occur, get help fast! Today heart attack and
stroke victims can benefit from new
medications and treatments unavailable to
patients in years past. For example,
clot-busting drugs can stop some heart
attacks and strokes in progress, reducing
disability and saving lives. But to be
effective, these drugs must be given
relatively quickly after heart attack or
stroke symptoms first appear. So again,
don't delay — get help right away!
Statistics
Coronary heart disease is America's No. 1
killer. Stroke is No. 3 and a leading cause
of serious disability. That's why it's so
important to reduce your risk factors, know
the warning signs, and know how to respond
quickly and properly if warning signs occur.
Heart Attack Warning Signs
Some heart attacks are sudden and
intense — the "movie heart attack," where no
one doubts what's happening. But most heart
attacks start slowly, with mild pain or
discomfort. Often people affected aren't
sure what's wrong and wait too long before
getting help. Here are signs that can mean a
heart attack is happening:
-
Chest discomfort. Most heart
attacks involve discomfort in the
center of the chest that lasts more
than a few minutes, or that goes
away and comes back. It can feel
like uncomfortable pressure,
squeezing, fullness or pain.
- Discomfort in other areas of the
upper body. Symptoms can include
pain or discomfort in one or both arms,
the back, neck, jaw or stomach.
- Shortness of breath with or
without chest discomfort.
- Other signs may include
breaking out in a cold sweat, nausea or
lightheadedness
As with men, women's most common
heart attack symptom is chest pain or
discomfort. But women are somewhat more
likely than men to experience some of the
other common symptoms, particularly
shortness of breath, nausea/vomiting, and
back or jaw pain.
Learn the signs, but remember this: Even
if you're not sure it's a heart attack, have
it checked out. Minutes matter! Fast action
can save lives — maybe your own. Don’t wait
more than five minutes to call 9-1-1.
Calling 9-1-1 is almost always the
fastest way to get lifesaving treatment.
Emergency medical services staff can begin
treatment when they arrive — up to an hour
sooner than if someone gets to the hospital
by car. The staff are also trained to revive
someone whose heart has stopped. Patients
with chest pain who arrive by ambulance
usually receive faster treatment at the
hospital, too.
If you can't access the emergency medical
services (EMS), have someone drive you to
the hospital right away. If you're the one
having symptoms, don't drive yourself,
unless you have absolutely no other option.
Top of page
Stroke
Warning Signs
The American Stroke Association says these
are the warning signs of stroke:
- Sudden numbness or weakness of the
face, arm or leg, especially on one side
of the body
- Sudden confusion, trouble speaking
or understanding
- Sudden trouble seeing in one or both
eyes
- Sudden trouble walking, dizziness,
loss of balance or coordination
- Sudden, severe headache with no
known cause
If you or someone with you has one or
more of these signs, don't delay!
Immediately call 9-1-1 or the emergency
medical services (EMS) number so an
ambulance (ideally with advanced life
support) can be sent for you. Also, check
the time so you'll know when the first
symptoms appeared. It's very important to
take immediate action. If given within three
hours of the start of symptoms, a
clot-busting drug can reduce long-term
disability for the most common type of
stroke.
Top of page
Cardiac arrest strikes immediately and
without warning. Here are the
signs:
- Sudden loss of responsiveness (no
response to tapping on shoulders).
- No normal breathing (the victim does
not take a normal breath when you tilt
the head up and check for at least five
seconds).
If these signs of cardiac arrest are
present, tell someone to call 9-1-1 and get
an AED (if one is available) and you
begin CPR immediately.
If you are alone with an adult who has these
signs of cardiac arrest, call 9-1-1 and get
an AED (if one is available) before you
begin CPR.
Use an AED as soon as it arrives.
Top of page
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Arthritis Foundation
http://www.arthritis.org/
Learn About
Arthritis
What is Arthritis?
Adapted
from The
Arthritis
Foundation's Guide
to Good Living with
Rheumatoid Arthritis
While often referred
to as if it were a
single disease,
arthritis is
actually an umbrella
term used for a
group of more than
100 medical
conditions that
collectively affect
nearly 46 million
adults and 300,000
children in America
alone. While the
most common form of
arthritis --
osteoarthritis (OA)
-- is most prevalent
in people over 60,
arthritis in its
various forms can
start as early as
infancy. Some forms
affect people in
their young-adult
years as they are
beginning careers
and families and
still others start
during the peak
career and
child-rearing years.
The common thread
among these 100-plus
conditions is that
they all affect the
musculoskeletal
system and
specifically the
joints - where two
or more bones meet.
Arthritis-related
joint problems
include pain,
stiffness,
inflammation and
damage to joint
cartilage (the
tough, smooth tissue
that covers the ends
of the bones,
enabling them to
glide against one
another) and
surrounding
structures. Such
damage can lead to
joint weakness,
instability and
visible deformities
that, depending on
the location of
joint involvement,
can interfere with
the most basic daily
tasks such as
walking, climbing
stairs, using a
computer keyboard,
cutting your food or
brushing your teeth.
For many people with
arthritis, however,
joint involvement is
not the extent of
the problem. Many
forms of arthritis
are classified as
systemic, meaning
they can affect the
whole body. In these
diseases, arthritis
can cause damage to
virtually any bodily
organ or system,
including the heart,
lungs, kidneys,
blood vessels and
skin.
Arthritis-related
conditions primarily
affect the muscles
and the bones.
Together, arthritis
and related
conditions are a
major cause of
disability in the
United States,
costing the U.S.
economy more than
$124 billion per
year in medical care
and indirect
expenses such as
lost wages and
production - and
costing millions of
individuals their
health, their
physical abilities
and, in many cases,
their independence.
And unless something
changes, the picture
is going to get
worse. As the
population ages, the
number of people
with arthritis is
growing.
Number of Americans with
arthritis or chronic joint symptoms:
Overall arthritis:
The disease also can affect other
parts of the body. Arthritis causes
pain, loss of movement and sometimes
swelling. Some types of arthritis
are:
-
Osteoarthritis, a degenerative
joint disease in which the
cartilage that covers the ends
of bones in the joint
deteriorates, causing pain and
loss of movement as bone begins
to rub against bone. It is the
most prevalent form of
arthritis.
-
Rheumatoid arthritis, an
autoimmune disease in which the
joint lining becomes inflamed as
part of the body’s immune system
activity. Rheumatoid arthritis
is one of the most serious and
disabling types, affecting
mostly women.
-
Gout, which affects mostly men.
It is usually the result of a
defect in body chemistry. This
painful condition most often
attacks small joints, especially
the big toe. Fortunately, gout
almost always can be completely
controlled with medication and
changes in diet.
-
Juvenile arthritis, a general
term for all types of arthritis
that occur in children. Children
may develop juvenile rheumatoid
arthritis or childhood forms of
lupus, ankylosing spondylitis or
other types of arthritis.
Read the CDC Report on the Impact of
Arthritis.
Visit the CDC for additional
statistics about arthritis.
CASA Court Appointed Special Advocate
http://casaoc.org/
History of the
CASA Movement
In 1977, a Seattle Superior
Court Judge named David Soukup
was concerned about trying to
make decisions on behalf of
abused and neglected children
without enough information. He
conceived the idea of appointing
community volunteers to speak up
for the best interests of these
children in court. He made a
request for volunteers; 50
citizens responded, and that was
the start of the CASA movement.
Today, there are more than
50,000 advocates serving in 948
state and local program offices
nationwide. CASA programs across
the country are known by several
different names, including
Guardian ad Litem, Child
Advocates and Voices for
Children.
Since the inception of CASA
advocacy, volunteers have helped
well over 1,000,000 children
find safe, permanent homes in
which they can thrive.
CHADD Children and Adults with Attention
–Deficit Hyperactivity Disorder
http://www2.chadd.org/
About AD/HD & ADD
Topics in this section:
About AD/HD & ADD
Attention-deficit/hyperactivity
disorder (AD/HD) is one of the
most common neurobehavioral
disorders. It is usually first
diagnosed in childhood and often
persists into adulthood. AD/HD
is a chronic disorder that can
negatively impair many aspects
of daily life, including home,
school, work, and interpersonal
relationships.
Because it is a lifespan
disorder that impacts so many
areas of an individual's daily
functioning, AD/HD is a serious
public health issue.
The National Resource Center
has partnered with the National
Alliance for Hispanic Health to
produce an introduction to AD/HD
in children. This is available
in both
English and
Spanish.
Other Web Sites:
-
AD/HD Global Network (AGN)
The AD/HD Global Network is
a non-profit international
foundation that seeks to
support AD/HD advocacy
groups and/or individuals by
serving as an information
and referral resource, and
by providing global AD/HD
training and consultancy.
-
Centers for Disease Control
and Prevention (CDC/NCBDDD)
AD/HD information page at
CDC's National Center on
Birth Defects and
Developmental Disabilities
-
CDC and Child Development
CDC's Child Development page
with information about major
projects and activities,
public health issues in
child development, child
development milestones, and
Positive Parenting Tips
sheets
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CH.A.D.D. Canada
CH.A.D.D. Canada is a
charitable organization that
aims to help support,
educate, and ultimately
better the lives of
individuals with ADHD, and
those who are for them.
-
Mental Health America
(formerly National Mental
Health Association)
General information on
mental health issues and
resources.
-
NICHQ
The National Initiative for
Children's Healthcare
Quality (NICHQ) is an
education and research
organization dedicated to
improving the quality of
health care provided to
children. NICHQ's mission is
to eliminate the gap between
what is and what can be in
health care for all
children.
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The REACH Institute
REsource for Advancing
Children's Health (REACH)
was founded to accelerate
the acceptance and effective
use of proven interventions
that foster children?s
emotional and behavioral
health.
Citizen Advocates for Foster Children’s
Rights
http://clcmn.org/
What is Foster Care?
Foster care is the temporary
placement of children and youth
with families outside of their
own home as a result of abuse or
neglect. The goal is to provide
a safe, stable, nurturing
environment.
Foster Child
Bill of Rights
Ratified in Congress Hall,
Philadelphia
Saturday, the Twenty-eighth of
April, Nineteen Hundred and
Seventy Three
Reaffirmed during the
National Focus on Foster Care
Conference, Norfolk, Virginia
Wednesday, the Fourth of May,
Nineteen Hundred and Eighty
Three
Even more than for
other children, society has a
responsibility, along with
parents, for the well-being of
children in foster care.
Citizens are responsible for
acting to insure their welfare.
Every child in
foster care is endowed with the
rights inherently belonging to
all children. In addition,
because of the temporary or
permanent separation from, and
loss of, parents and other
family members, the child
requires special safeguards,
resources, and care.
EVERY CHILD IN FOSTER
CARE HAS THE INHERENT RIGHT:
Article the first
....to be cherished by a family
of his own, either his family
helped by readily available
services and supports to resume
his care, or an adoptive family
or, by plan, a continuing foster
family.
Article the second
....to be nurtured by foster
parents who have been selected
to meet his individual needs,
and who are provided services
and supports, including
specialized education, so that
they can grow in their ability
to enable the child to reach his
potentiality.
Article the third
....to receive sensitive,
continuing help in understanding
and accepting the reasons for
his own family's inability to
take care of him, and in
developing confidence in his own
self worth.
Article the
fourth
....to receive continuing loving
care and respect as a unique
human being...a child growing in
trust in himself and others.
Article the fifth
....to grow up in freedom and
dignity in a neighborhood of
people who accept him with
understanding, respect and
friendship.
Article the sixth
....to receive help in
overcoming deprivation or
whatever distortion in his
emotional, physical,
intellectual, social and
spiritual growth may have
resulted from his early
experiences.
Article the seventh
....to receive education,
training, and career guidance to
prepare for a useful and
satisfying life.
Article the eighth
....to receive preparation for
citizenship and parenthood
through interaction with foster
parents and other adults who are
consistent role models.
Article the ninth
....to be represented by an
attorney-at-law in
administrative or judicial
proceedings with access to fair
hearings and court review of
decisions, so that his best
interests are safeguarded.
Article
the tenth
....to receive a high quality of
child welfare services,
including involvement of the
natural parents and his own
involvement in major decisions
that affect his life.
Fibromyalgia Foundation
http://www.fmaware.org
Fibromyalgia
What is fibromyalgia?
Fibromyalgia (FM) is a
chronic pain illness
characterized by widespread
musculoskeletal aches, pain and
stiffness, soft tissue
tenderness, general fatigue, and
sleep disturbances. The most
common sites of pain include the
neck, back, shoulders, pelvic
girdle, and hands, but any body
part can be affected.
Fibromyalgia patients experience
a range of symptoms of varying
intensities that wax and wane
over time.
Who is affected?
It is estimated that
approximately 3-6% of the U.S.
population has FM. Although a
higher percentage of women of
all ages and races are affected,
it does strike men and children.
Because of its debilitating
nature, fibromyalgia has a
serious impact on patients'
families, friends, and
employers, as well as society at
large.
What are the
symptoms?
FM is characterized by the
presence of multiple tender
points and a constellation of
symptoms.
- Pain
The pain of FM is profound,
widespread and chronic. It
knows no boundaries,
migrating to all parts of
the body and varying in
intensity. FM pain has been
described as stabbing and
shooting pain and deep
muscular aching, throbbing,
and twitching. Neurological
complaints such as numbness,
tingling, and burning are
often present and add to the
discomfort of the patient.
The severity of the pain and
stiffness is often worse in
the morning. Aggravating
factors that affect pain
include cold/humid weather,
non-restorative sleep,
physical and mental fatigue,
excessive physical activity,
physical inactivity, anxiety
and stress.
- Fatigue
In today's world many people
complain of fatigue;
however, the fatigue of FM
is much more than being
tired. It is an
all-encompassing exhaustion
that interferes with even
the simplest daily
activities. It feels like
every drop of energy has
been drained from the body,
which at times can leave the
patient with a limited
ability to function both
mentally and physically.
- Sleep problems
Many fibromyalgia
patients have an associated
sleep disorder that prevents
them from getting deep,
restful, restorative sleep.
Medical researchers have
documented specific and
distinctive abnormalities in
the Stage 4 deep sleep of FM
patients. During sleep,
individuals with FM are
constantly interrupted by
bursts of awake-like brain
activity, limiting the
amount of time they spend in
deep sleep.
- Other symptoms
Additional symptoms
may include: irritable bowel
and bladder, headaches and
migraines, restless legs
syndrome (periodic limb
movement disorder), impaired
memory and concentration,
skin sensitivities and
rashes, dry eyes and mouth,
anxiety, depression, ringing
in the ears, dizziness,
vision problems, Raynaud's
Syndrome, neurological
symptoms, and impaired
coordination.
How
is it diagnosed?
Currently there are no
laboratory tests available for
diagnosing fibromyalgia. Doctors
must rely on patient histories,
self-reported symptoms, a
physical examination and an
accurate manual tender point
examination. This exam is based
on the standardized American
College of Rheumatology (ACR)
criteria. Proper implementation
of the exam determines the
presence of multiple tender
points at characteristic
locations.
It is estimated that it
takes an average of five years
for an FM patient to get an
accurate diagnosis. Many doctors
are still not adequately
informed or educated about FM.
Laboratory tests often prove
negative and many FM symptoms
overlap with those of other
conditions, thus leading to
extensive investigative costs
and frustration for both the
doctor and patient. Another
essential point that must be
considered is that the presence
of other diseases, such as
rheumatoid arthritis or lupus,
does not rule out an FM
diagnosis. Fibromyalgia is not a
diagnosis of exclusion and must
be diagnosed by its own
characteristic features.
To receive a diagnosis of
FM, the patient must meet the
following diagnostic criteria:
- Widespread pain in all
four quadrants of the body
for a minimum duration of
three months
- Tenderness or pain in at
least 11 of the 18 specified
tender points when pressure
is applied
What causes
fibromyalgia?
While the underlying cause or
causes of FM still remain a
mystery, new research findings
continue to bring us closer to
understanding the basic
mechanisms of fibromyalgia. Most
researchers agree that FM is a
disorder of central processing
with neuroendocrine/neurotransmitter
dysregulation. The FM patient
experiences pain amplification
due to abnormal sensory
processing in the central
nervous system. An increasing
number of scientific studies now
show multiple physiological
abnormalities in the FM patient,
including: increased levels of
substance P in the spinal cord,
low levels of blood flow to the
thalamus region of the brain,
HPA axis hypofunction, low
levels of serotonin and
tryptophan and abnormalities in
cytokine function.
Recent studies show that
genetic factors may predispose
individuals to a genetic
susceptibility to FM. For some,
the onset of FM is slow;
however, in a large percentage
of patients the onset is
triggered by an illness or
injury that causes trauma to the
body. These events may act to
incite an undetected
physiological problem already
present.
Exciting new research has
also begun in the areas of brain
imaging and neurosurgery.
Ongoing research will test the
hypothesis that FM is caused by
an interpretative defect in the
central nervous system that
brings about abnormal pain
perception. Medical researchers
have just begun to untangle the
truths about this life-altering
disease.
How is fibromyalgia
treated?
One of the most important
factors in improving the
symptoms of FM is for the
patient to recognize the need
for lifestyle adaptation. Most
people are resistant to change
because it implies adjustment,
discomfort and effort. However,
in the case of FM, change can
bring about recognizable
improvement in function and
quality of life. Becoming
educated about FM gives the
patient more potential for
improvement.
An empathetic physician who
is knowledgeable about the
diagnosis and treatment of FM
and who will listen to and work
with the patient is an important
component of treatment. It may
be a family practitioner, an
internist, or a specialist
(rheumatologist or neurologist,
for example). Conventional
medical intervention may be only
part of a potential treatment
program. Alternative treatments,
nutrition, relaxation
techniques, and exercise play an
important role in FM treatment
as well. Each patient should,
with the input of a healthcare
practitioner, establish a
multifaceted and individualized
approach that works for them.
- Pain management
Over-the-counter
pain medications, such as
acetaminophen or ibuprofen,
may be helpful in relieving
pain. The physician may
decide to prescribe one of
the newer non-narcotic pain
relievers (e.g. tramadol) or
low doses of antidepressants
(e.g. tricyclic
antidepressants, serotonin
reuptake inhibitors) or
benzodiazepines. Patients
must remember that
antidepressants are
"serotonin builders" and can
be prescribed at low levels
to help improve sleep and
relieve pain. If the patient
is experiencing depression,
higher levels of these or
other medications may need
to be prescribed. Lidocaine
injections into the
patient's tender points also
work well on localized areas
of pain. An important aspect
of pain management is a
regular program of gentle
exercise and stretching,
which helps maintain muscle
tone and reduces pain and
stiffness.
- Sleep management
Improved sleep can
be obtained by implementing
a healthy sleep regimen.
This includes going to bed
and getting up at the same
time every day; making sure
that the sleeping
environment is conducive to
sleep (i.e. quiet, free from
distractions, a comfortable
room temperature, a
supportive bed); avoiding
caffeine, sugar, and alcohol
before bed; doing some type
of light exercise during the
day; avoiding eating
immediately before bedtime;
and practicing relaxation
exercises as you fall to
sleep. When necessary, there
are new sleep medications
that can be prescribed, some
of which can be especially
helpful if the patient's
sleep is disturbed by
restless legs or periodic
limb movement disorder.
- Psychological
support
Learning to live with a
chronic illness often
challenges an individual
emotionally. The FM patient
needs to develop a program
that provides emotional
support and increases
communication with family
and friends. Many
communities throughout the
United States and abroad
have organized fibromyalgia
support groups. These groups
often provide important
information and have guest
speakers who discuss
subjects of particular
interest to the FM patient.
Counseling sessions with a
trained professional may
help improve communication
and understanding about the
illness and help to build
healthier relationships
within the patient's family.
- Other treatments
Complementary therapies can
be very beneficial. These
include: physical therapy,
therapeutic massage,
myofascial release therapy,
water therapy, light
aerobics, acupressure,
application of heat or cold,
acupuncture, yoga,
relaxation exercises,
breathing techniques,
aromatherapy, cognitive
therapy, biofeedback, herbs,
nutritional supplements, and
osteopathic or chiropractic
manipulation.
What is the
prognosis?
Better than ever before! The
efforts of individuals, support
groups, organizations and
medical professionals to help
improve the quality of life for
people with FM are starting to
pay off. Better ways to diagnose
and treat FM are on the horizon.
The symptoms of FM can vary in
severity and often wax and wane,
but most patients do tend to
improve over time. By actively
seeking new information, talking
to others who have FM,
re-evaluating daily priorities,
making lifestyle changes, and
working hard to keep a hopeful
attitude, the FM sufferer can
become the FM survivor!
Institute for Attachment and Child
Development
http://www.instituteforattachment.org/
What is
attachment
disorder?
An
attachment disorder is a
condition in which individuals
have difficulty forming loving,
lasting intimate relationships.
Attachment disorders vary in
severity, but the term usually
is reserved for individuals who
show a nearly complete lack of
ability to be genuinely
affectionate with others. They
typically fail to develop a
conscience and do not learn to
trust.
Children with healthy
attachments to a loving
caregiver ...
-
Feel secure and loved
-
Can attain their potential
-
Can develop reciprocal
relationships
-
Develop a conscience
-
Cope with stress and anxiety
-
Become self-reliant
Children who do not have healthy
attachments with a loving
caregiver . . .
-
Do not trust caregivers or
adults in authority.
-
Have extreme control
problems, manifested in
covertly manipulative or
overtly hostile ways.
-
Do not develop a moral
foundation: no empathy, no
remorse, no conscience,
and/or no compassion for
others.
-
Lack the ability to give and
receive genuine affection or
love.
-
Resist all efforts to
nurture or guide them.
-
Lack cause and effect
thinking.
-
Act out negatively,
provoking anger in others.
-
Lie, steal, cheat, and/or
manipulate.
-
Are destructive, cruel,
argumentative and/or
hostile.
-
Lack self-control - are
impulsive.
-
Are superficially charming
and engaging.
The
process of developing healthy
attachments can be disrupted
by...
Abuse,
neglect, abandonment, multiple
changes in caregivers, foster
care, adoption, painful illness,
exposure to alcohol/drugs in
utero, maternal depression,
and/or inconsistent day care.
Parents of Children with
Attachment disorder frequently .
. .
-
Feel isolated and depressed.
-
Feel frustrated and
stressed.
-
Are hypervigilant, agitated
and have difficulty
concentrating.
-
Are confused, puzzled and
obsessed with finding
answers.
-
Feel blamed by family,
friends, and professionals.
-
Feel helpless, hopeless, and
angry.
-
Feel that their family's
problems are minimized by
the helping profession.
Lupus
http://www.lupus.org/newsite/index.html
|
|
about Lupus
Lupus is a
chronic
inflammatory
disease that can
affect various
parts of the
body, especially
the skin,
joints, blood,
and kidneys. |
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Introduction
to Lupus
Lupus is an
autoimmune
disease that
can affect
various
parts of the
body,
including
the skin,
joints,
heart,
lungs,
blood,
kidneys and
brain.
Normally the
body's
immune
system makes
proteins
called
antibodies,
to protect
the body
against
viruses,
bacteria,
and other
foreign
materials.
These
foreign
materials
are called
antigens.
In an
autoimmune
disorder
like lupus,
the immune
system
cannot tell
the
difference
between
foreign
substances
and its own
cells and
tissues. The
immune
system then
makes
antibodies
directed
against
itself.
These
antibodies
-- called
"auto-antibodies"
(auto means
'self') --
cause
inflammation,
pain and
damage in
various
parts of the
body.
Inflammation
is
considered
the primary
feature of
lupus.
Inflammation,
which in
Latin means
"set on
fire," is
characterized
by pain,
heat,
redness,
swelling and
loss of
function,
either on
the inside
or on the
outside of
the body (or
both).
For most
people,
lupus is a
mild disease
affecting
only a few
organs. For
others, it
may cause
serious and
even
life-threatening
problems.
Although
epidemiological
data on
lupus is
limited,
studies
suggest that
more than
16,000
Americans
develop
lupus each
year.
The Lupus
Foundation
of America (LFA)
estimates
between 1.5
- 2 million
Americans
have a form
of lupus,
but the
actual
number may
be higher.
More than 90
percent of
people with
lupus are
women.
Symptoms and
diagnosis
occur most
often when
women are in
their
child-bearing
years,
between the
ages of 15
and 45.
In the
United
States,
lupus is
more common
in African
Americans,
Latinos,
Asians, and
Native
Americans
than in
Caucasians.
Lupus: an
online
tutorial
The National
Library of
Medicine has
created an
excellent
online
tutorial
which
provides a
comprehensive
overview of
the disease,
symptoms,
health
effects and
treatments.
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Multiple Sclerosis Society
http://www.nationalmssociety.org/
Living with MS
For People Newly
Diagnosed
If you or someone close to you has recently been
given a diagnosis of multiple sclerosis, you
probably have a lot of questions and concerns. Or,
you may be feeling so overwhelmed by the diagnosis
that you aren’t sure what kinds of questions to ask.
The National MS Society has developed programs to
give you the information and support
you need to live comfortably and confidently with
this change in your life.
|
An Introduction to MS |
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|
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Living with MS
Addresses questions frequently asked after
diagnosis of MS is received-from possible
causes to advice on coping | | |